Curated resources you can trust.
Organizations You can lean on.
We’ve listed expert organizations and brought together resources from leading experts in the field so you don’t have to navigate this alone. These materials reflect the latest evidence, clinical experience, and shared wisdom from specialists who care deeply about chronic conditions. Our goal is to give you clear, trustworthy information that supports better understanding, better decisions, and better care.
A Community Dedicated to Infection-Associated Chronic Conditions
The Bateman Horne Center
The Bateman Horne Center (BHC) is a prominent 501(c)(3) non-profit Center of Excellence dedicated to improving clinical care, advancing research, and providing medical education for complex, chronic conditions. Founded in 2015 by Dr. Lucinda Bateman, the center was created to fill a massive gap in the medical field for diseases that are frequently misunderstood or difficult to diagnose. The center focuses heavily on infection-associated chronic conditions (IACCs) and complex comorbidities.
Health Rising
Health Rising is a prominent, patient-led website and blog dedicated to providing comprehensive coverage of research, clinical trials, and treatment options for neuroimmune diseases. Founded in December 2012 by prominent patient advocate Cort Johnson, the platform focuses on complex chronic conditions that have historically been underfunded and misunderstood like ME/CFS.
The Workwell Foundation
The Workwell Foundation is a nonprofit research organization focused on the functional aspects of complex fatigue-related illnesses. Based in Ripon, California, the foundation is internationally recognized for its pioneering work documenting the physiological basis of post-exertional malaise (PEM) and functional impairment.
Workwell focuses primarily on conditions linked to cellular energy production and mitochondrial dysfunction.
The U.S. ME/CFS Clinician Coalition is an organization of American medical experts dedicated to improving clinical care and medical education for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Formed in 2018 out of clinical summits hosted by the Bateman Horne Center, the coalition represents a collaborative network of physicians and clinical experts who have collectively spent decades treating thousands of patients.
The U.S. ME/CFS Clinician Coalition
Nova Southeastern University Institute for Neuro-Immune Medicine
Dr. Nancy Klimas is an internationally recognized clinical immunologist, researcher, and physician specializing in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Gulf War Illness (GWI), and Long COVID. She serves as the Director of the Institute for Neuro-Immune Medicine (INIM) at Nova Southeastern University (NSU) in Florida. Over her 40-year career, she has been one of the most prominent advocates and leaders in the ME/CFS scientific community, famously advocating for equitable research funding compared to other major illnesses.
Lymedisease.org
LymeDisease.org is a 501(c)(3) non-profit organization dedicated to advocacy, education, and research for people affected by Lyme disease and other tick-borne illnesses. Originally founded in California in 1989 as the California Lyme Disease Association (CLDA), it has since grown into the largest communications and advocacy network for Lyme patients in the United States.
The organization is led by CEO Lorraine Johnson and centers its initiatives on patient empowerment, science-based public policy, and big-data research.
#MEAction
#MEAction (The Myalgic Encephalomyelitis Action Network) is a prominent, global grassroots advocacy organization dedicated to fighting for health equity, research, and medical education for people living with Myalgic Encephalomyelitis (ME/CFS) and Long COVID. Co-founded in 2015 by Jennifer Brea and Beth Mazur, the network empowers patients, caregivers, and allies through digital campaigning and direct action.
The organization uses Action Network as part of its digital infrastructure to coordinate petitions, email campaigns, and grassroots mobilization.
Open Medicine Foundation
The Open Medicine Foundation (OMF) is a global nonprofit organization established in 2012 dedicated to funding and coordinating collaborative scientific research into chronic complex multi-system diseases.
OMF systematically investigates conditions that disrupt multiple bodily systems simultaneously, with a primary focus on:
• Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS)
• Long COVID• Fibromyalgia (FMS)
• Chronic/Post-Treatment Lyme Disease
Solve M.E.
The Solve ME/CFS Initiative (Solve M.E.) is a leading non-profit organization dedicated to accelerating research and clinical solutions while driving aggressive federal advocacy for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Long COVID, and other post-infectious chronic illnesses.
By bridging the gap between scientific discovery and legislative policy, the organization works to make these highly debilitating conditions widely understood, diagnosable, and treatable.
Downloadable Resources and Knowledge Base
Managing Post-Exertional Malaise (PEM)
Practical strategies for energy management and pacing.
CLINICAL CARE GUIDE Managing ME/CFS, Long COVID, & IACCs
Written by The Bateman Horne Center, First Edition 2025 v7